Chiari Malformation (Arnold-Chiari)is a serious neurological disorder where the bottom part of the brain, the cerebellum,
descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.
These are our beautiful children Alexa Aileen, Alyssa Nicole and Carlos Eduardo.
Alexa was diagnosed with CM1-11mm displacement.
Alyssa was diagnosed with CM1-5mm displacement.
Carlos was diagnosed with CM1-15mm displacement.
This is totally new to us other than daycare illnesses/virus or kids never had never been sick.
We have no idea what this is or why we are facing this. We have been doing alot of research on it and getting educated on
Chiari Malformation to find out how to help our children.
We will do anything to get the best doctors to help our babies! Carlos and I know that we have the BEST DOCTOR OF
DOCTORS-OUR LORD JESUS who will work through the hands of these doctors to help our children!
Symptoms List
The list below attempts to put symptoms in the order of importance but, it is difficult to say with
certainty which symptoms are more common than others. There have been no formal or controlled studies of the percentages of
patients that suffer from each symptom. In addition, symptoms may differ from patient to patient depending on where pressure
is exerted (i.e. whether tonsillar descent is causing pressure on the brainstem or not, whether syrinx exists, etc).
In general, people without herniation may not suffer symptoms associated with brainstem compression
but, rather, with lack of CSF flow and raised ICP. These symptoms tend to mirror those of PTC and include some of the ones
listed below.
Headache (esp. if daily or at lower back of head)
Painful tension in neck
Fatigue
Migraines
Dizziness
Visual disturbances / loss of vision / spots in vision / double vision / seeing spots
or "halos" / nystagmus
Tingling / numbness in the extremeties
General imbalance / clumsiness
Memory loss
Restricted movement
Intolerance to bright light / difficulty adjusting to light change
Vertigo from position change or sudden standing
Difficulty walking on uneven ground / feeling ground under feet
Poor / degraded motor skills
Difficulty driving
Difficulty negotiating steps
Pressure / pain in the neck
Pressure / pain behind the eyes (soreness in the eyeballs)
Back pain
Neck spasms
Insomnia
Ringing in ears (like the tone heard in a hearing test)